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| Last weekend, playing in the snow I only lasted 5 minutes before I had to use the bathroom. |
Hey all! Sorry I went MIA again... A lot going on over here. I haven't been feeling well... At all. I've been sick and on and off of prednisone since I had Baby A. I've been avoiding further, harsher treatment because I didn't want to take stronger meds. But, with nursing and my Crohns being so active, my weight has dropped and I've been up every night for hours feeling ill, bleeding just about everytime I use the bathroom. I didn't want to bring this up on the blog because I knew I would receive a lot of "doesn't diet help..." etc. Well, diet does help me, but when I'm sick, I can't eat raw foods or anything with fiber and I don't want to live on white rice and rice cakes for the rest of my life. So I took the next step and chose to start IV infusions of medication, every 8 weeks. I have gone this route in the past and it helped me stay well for 2 years. I want to be able to do this along with eating the healthiest diet possible. East meets West, if you will. I don't want to disappoint any of you. I know there are gurus who claimed to have "cured" their crohns with diet, but my Crohns is considered a severe case, and while I would love to say diet can cure me, it just isn't happening. For now, I'll stick to this approach. To each his own. Believe me, this is the last thing I wanted.
I'm happy to say, I can still nurse since the molecule in the medication is too big to pass into my milk. I can even take it while pregnant (but since I went into remission while pregnant with Baby A, I think I would stop taking this before we tried to conceive again. We are going to wait another year or so before that happens). I had my first treatment yesterday, it was very hard for me and I even had a little crying breakdown before I went.
Also, when the Mastitis I had cleared up, it left a small lump in my breast that felt like a pebble. I had that checked out this week and it seems to be nothing but my doctor is sending me for an ultrasound, next week, just to be safe.
So that's what's going on with me. I'm not looking for advice, just the support and love that you all have always shown me. :)
Anyway, T turned 30 on Wednesday and we are going out to dinner Saturday night to celebrate, I'm hoping I feel better by then. My birthday is this up coming Wednesday and we hope to go to dinner at a vegan restaurant. Crohns has had me being a prisoner in my own home the past few weeks. I don't want Baby A to suffer because of me, I want to be a mother who can play with her kids, run around and be fun! Hopefully, this treatment will let that happen.
Thank you all for listening! Xo